CIDsCaNN: The Canadian Children Inflammatory Bowel Disease Network – A Partnership with the Ch.I.L.D. Foundation: multi-center inception cohort study

Blackboard with sign inflammatory bowel disease IBD and stethoscope.

PI: Dr. David Mack Study contact: [email protected] Study contact full name: Ruth Singleton Research Area: Inflammatory Bowel Disease Who to contact regarding participation: [email protected] The Canadian Children Inflammatory Bowel Disease (IBD) Network is a major effort put in place by pediatric IBD researchers and physicians in Canada to share knowledge, biological samples (samples of things from your body like … Read more

Implementing a Multimodal Intervention to Improve the Transition of Patients with Inflammatory Bowel Disease (IBD) from Pediatric to Adult Care

Young woman holding stomach on couch

PI: Dr. David Mack Study contact: [email protected] Study contact full name: Ruth Singleton Research Area: Inflammatory Bowel Disease Who to contact regarding participation: [email protected][email protected] Lay Summary:  The study aims to develop a transition program that will improve the process of transitioning to adult care for IBD patients across Canada and internationally. Other studies have shown that patients sometimes have … Read more

ASCEND: intergenerAtional inteStinal miCrobiomEs iN ibD – an observational study to gather and link familial microbiome intestinal stool bacteria with pediatric participants

Intergenerational family of three women on sofa

PI: Dr. David Mack Study contact: [email protected] Study contact full name: Ruth Singleton Research Area: Inflammatory Bowel Disease Who to contact regarding participation: [email protected] Lay Summary:  We are interested to learn more about the similar bacteria in the gut that seems to be familial (passed on from generation to generation). To study this we need to collect stool samples from … Read more

Evaluation of the satisfaction and usefulness of an electronic Individualized Acute Seizure Action Plan (ASAP): A Prospective Quality Improvement Study

PI: Dr. Daniela Pohl Study contact: [email protected] Study contact full name: Valeria Dimitrova Research Area: Nervous System Conditions Who to contact regarding participation: [email protected] Lay Summary: Approximately 1% of the population worldwide lives with epilepsy. As our understanding of the genetic causes of epilepsy advances, personalized medicine is becoming more and more common in the … Read more

Phase III randomized double-blind placebo-controlled trial of metformin for cognitive recovery and white matter growth in paediatric medulloblastoma patients

PI: Dr. Donna Johnston Study contact: [email protected] Study contact full name: Doaa Abdelfattah Research Area: Cancer Who to contact regarding participation: Dr. Donna Johnston (Site PI) Doaa Abdelfattah (Research Coordinator) Lay Summary: We are testing the efficacy of treatment with metformin for promoting cognitive recovery and brain growth in children/adolescents treated for medulloblastoma in a … Read more

Engaging youth and families in designing a mental health service plan in response to the COVID-19 pandemic: A participatory action research study

PI: Dr. Mario Cappelli Study contact: [email protected] Study contact full name: Matthew Kent Research Area: Mental Health Who to contact regarding participating: Mathew Kent ([email protected]) Lay Summary: The COVID-19 pandemic brought (1) changes in the mental health and addictions of young people and (2) an abrupt transition to the virtual delivery of services. We are seeking … Read more

Impact of the CHEO Active Website

PI: Dr. Pat Longmuir Study contact: [email protected] Who to contact regarding participating: Jenna Yaraskavitch [email protected] Research Area: Healthy Active Living and Obesity Lay Summary: Physical activity is very important for the health and well-being of children and teens. However, medical conditions or disabilities can make it harder to be active. The CHEO Active website provides over … Read more

Qualitative inquiry into the lived experiences of LGBTQ2+ youth in their interactions with the health care system in Ottawa

PI: Dr. Megan Harrison Study contacts: Pediatric Resident Research Leads – Dr. Kyle Canton (he/they), Dr. Maria Karaceper (she/her), Dr. Zoe Lazaris-Brunner (she/her), Dr. Michael Schlegelmilch (he/him). They can be reached directly at [email protected] for study-related questions or information. Research Area: Adolescent Health – Gender Diversity Lay Summary: LGBTQ2S+ youth experience a host of health inequities, stemming, in part, … Read more