PI: Dr. Daniela Pohl

Study contact: [email protected]

Study contact full name: Valeria Dimitrova

Research Area: Nervous System Conditions

Who to contact regarding participation: [email protected]

Lay Summary: Approximately 1% of the population worldwide lives with epilepsy. As our understanding of the genetic causes of epilepsy advances, personalized medicine is becoming more and more common in the pediatric neurology clinic. In emergency situations, for example status epilepticus, patients may present to community emergency departments where providers may not be as familiar with or comfortable managing children with complex epilepsy. Some patients, due to their underlying genetic diagnosis or a history of adverse medication reactions, have contraindications which preclude them from receiving standardized treatment in status epilepticus. Seizure action plans are often used in schools to help care providers administer first line medications for seizure emergencies. Detailed action plans are more frequently being requested by parents to help guide emergency seizure management in the community setting. This project will be a quality improvement project including evaluation of the literature regarding seizure action plans, with the goal of developing a standard seizure action plan which can be utilized in the neurology clinic at CHEO and integrated into our electronic medical record. The project will be conducted within the PDCA (Plan-Do-Check-Act) quality improvement framework.